Friday, February 19, 2010
Pathology informed us yesterday that Jacob does NOT have CANCER!! YAY!. We are waiting on results to find out exactly what it is. We are at home and Jacob attended school today and will be at Archery practice this afternoon. Feels so good to get back to normal. I will post an update when we have the completed pathology report.
Thank you everyone for your prayers! I truely believe that they made a difference in Jacobs health. Because 3 weeks ago even the doctors were concerned, and now he is going to be okay~!!
Peace, Love, and Prayer!
Saturday, February 13, 2010
The surgeon came in a took the drain tube out around 4pm. Said that he is looking good. He can shower but needs to take it easy for a few days.
Monday we have to see the primary physician and Wednesday we have various appointments and Thursday we see the surgeon again for followup and pathology results(if we dont already have them Monday).
I just got the room cleaned up and got Jacob in the bed resting, he did ask for pain medicine 13 hours since the last dose. I guess moving around really bothers him, he is pretty stiff.
Well Im going to try and get some rest now.
Peace, Love, and Prayer!
Friday, February 12, 2010
It went well, he has 3-4 small incisions that I can tell, he is pretty swollen. It took them 3 hours. He has a drain coming from his face. They have given him Percocet, Dilaudid, and oxycodone for pain. We see the surgeon next week and expect to have results then.
We are doing well.(Kaite and I got food poisoning from the cafe yesterday and finally we are better. Who would have thought you could get food poisoning from eating at the hospital?) Jacob is really irritated with the doctors and nurses and other staff bothering him. He is not really resting well. He was awake every hour during the night, up for a bit at 2am and up for good at 5am. He went 22 hours with no pain medicine and we finally got him to tell us he needed some, not sure why he wont ask for it, I guess he is trying to be tough or he doesn't like feeling drugged. The primary doctor came in a bit ago to check on him, she said we will see her on Monday and we could have results by then, possibly. She was not sure how long the surgeons wanted the drain in, we should see one of them soon today.
Jacob received a netbook from the Commercial Appeal so we can keep up with this site and he can talk to people. He is very greatful!!!! He also received a Gameboy Game from his Mimi and a shirt and hat from Ms. Holt. He wants to send special thanks to everyone.
I want to thank everyone for their continued support and special Thanks to My sister Rachel for taking care of Kaite while she was feeling under the weather, and for taking care of my 4 legged child Duke, and for taking care of us while we are here. I want to send special Thanks to my Uncle John for coming to check on us and taking care of Jacob. I also want to send a big thank you to my sister Leslie and her family for taking care of my little furry baby Bella(I hope she stops crying, soon I know she misses her cuddle buddy Duke.)
Well thats all for now, if I missed anyone Im sorry!
I will post update when we hear from the surgeon.
Peace, Love, Prayer!
Thursday, February 11, 2010
Wednesday, February 10, 2010
Peace, Love, and Prayers!
Tuesday, February 9, 2010
Monday, February 8, 2010
Peace, Love and Prayer!
Sunday, February 7, 2010
Thank you everyone for your continued support!!
Peace, Love, and Prayers!!
Friday, February 5, 2010
Thursday, February 4, 2010
The ENT, Dr. Sandeep Samant, looked over Jacob's scans(CT and MRI) and informed us that there is bilateral lymph nodes in his neck that are of concern in addition to the masses in his face and neck. So Monday, latest, we will know if there is any more areas in Jacob's body that are of concern. And as of right now on Wednesday we will return to St. Jude for more tests and visits with the doctors before they do an open biopsy on Jacob at 9am on Thursday. Dr. Samant seems concerned and says the only way to get a definite answer is to go in a take the lymph node and a piece of the mass that is in Jacob's jaw area. At this time he will not be removing the Parotid gland(which is the mass that is measuring 9.5mm and the biggest concern.) They tell us that we should have simple results on Friday afternoon. They will do deep testing if they see anything in either specimen that is unidentifiable.
So for now, we are in Memphis until Saturday morning, then home to help Kaite get ready for her Valentines Dance and Jacob ready for his. Then we head back to Memphis on Tuesday for the schedule next week.
Will post more as I know more.
Peace, Love, and Prayer!!
Wednesday, February 3, 2010
Also, just wanted to let everyone know that if you have any questions or want specific info or updates, please contact me or my other sister Rachel. If you need our cell numbers, please email me email@example.com. Sara is really not able to answer calls right now and it is very difficult for her to have to go over everything again and again. She needs to focus on Jacob right now, so Rachel and I will be more than happy to answer any questions that you might have or pass on any messages that you have. Also, commenting on the blog is a great way to share your thoughts and support!
Peace, Love, & Prayers,
(for Sara, Kaite, & Jacob)
Tuesday, February 2, 2010
As I go through the house looking for paperwork and phone numbers of everyone I get an automated appointment confirmation phone call...9 appointments Thursday!! WOW!! I thought that automated lady would never stop....HAHAHA
8am(she said that twice so is there 2 appointments at 8 or is something wrong, if so..thats 10!!)8:30am, 10am, 11am, 1pm,1:30pm,3pm,4pm, 5:15pm. Thats just for Thursday. As of right now its only one for Friday, but we were told to be prepared to stay. Also, I am not sure about access to a computer while I am there, I think they have a media room. I will check it out when I get there. If I find a place I will surely send an update.
Thank you everyone and keep praying!
Peace, Love, and Prayer,
Monday, February 1, 2010
The appointments start Thursday 8am, several throughout the day with the last being at 5:15pm and finish up(as we know right now) Friday at 9am. They told me at any point there may be appointments added.
We are getting closer to ordering wristbands. I am working with a company now. If you are interested in purchasing one, they will be $3 plus shipping and handling. Please email me at firstname.lastname@example.org if you have any questions or if you would like to sell them at your school or workplace! All help in raising money for Jacob and raising awareness about Adenoid Cystic Carcinoma is greatly appreciated!
Sunday, January 31, 2010
Ok so its time to begin the journey. We are starting to get ready for our first trip to St. Jude. Reading the St. Jude web site for the list of things to bring, making sure the laundry is done, making sure that Kaite is packed to go stay with Leslie and Eric for an undetermined amount of time, making sure Jacob and I have what we need to go for an undetermined amount of time(Really thinking I may wait to talk to the Travel Office at St. Jude before we start packing.), paperwork, medical information, phone numbers, and everything else. Wow its really a lot to take in and pretty overwhelming. I took Jacob to get some slippers and new socks, the boy is really rough on socks, HAHAHA. Well just wanted to let everyone know what is going on with us right now. I will post when we know the details of our trip tomorrow. Sounds like we have our own travel guide, HAHAHA sure wish it was to Cancun or something. : )
Saturday, January 30, 2010
Wow! The snow is cold but we are having a great time sliding down the hill. We were being pulled around the hill by my Uncle Eric. Coffee is good on a cold day with your family. Last night we were out of power, but we lit some candles and we played a boardgame.
Friday, January 29, 2010
Now to the friends and family of Jacob's mom, Sara. Sara has started her own blog on blogger. She needed a place to vent in a grown up fashion! What she is going through is what we as parents hope to never be faced with. Be aware that her blog may contain adult language and some intense thoughts and feelings, so be cautious if you or your children are going to follow it! Follow at Your Own Risk- LOL!! Just click the link on the right that says Jacob's Mommie!
Thursday, January 28, 2010
Another day of waiting till I find out my appointment to see the doctor at St Jude. I am tired all the time and it is annoying and im about to fall asleep in my class. It is really annoying. I hope that we go to school tomorrow because I have archery practice and if we dont, I want to go hang out with my Uncle Eric. Since we moved to Lawrenceburg, Uncle Eric and Aunt Leslie have been supporting us and I just want to Thank them so much.
**I need pictures people!! If you have any fun or silly pictures of Jacob or just your favorite, please email them to email@example.com! I am working on some things and any photos would be greatly appreciated!**
Wednesday, January 27, 2010
Tuesday, January 26, 2010
I am feeling good with all the support not only by my family, but my friends and teachers. Today my mom told me about my doctor at St. Jude and I think we are lucky to have a very experienced doctor. If my mom likes her, I will too.
Thanks Everyone for the Great Support
Monday, January 25, 2010
Hello. My name is Jacob. I am 14 years old. Today January 25, 2010, I was diagnosed with Adenoid Cystic Carcinoma. Tomorrow, the doctor Dr. Rajah Atyiah, will call St. Jude in Memphis and find out when we go to see the specialist there and find out my treatment plan.
From birth I have had many of surgeries and health battles. My first being a Pyloric Stenosis repair at Vanderbilt.
Then I was diagnosed with a Hemangioma on my back. They used Steriod Treatment first, then Laser Surgery to try and shrink it. Then after 3 years of no success and the Hemangioma growing larger the doctors decided to remove it and do skin graphs from the lower part of my back.
When I was 7 I had eye surgery, at LeBonheur in Memphis, to correct a lazy eye. Which did work very well and I only need reading glasses.
Then when I was 8 the Hemangioma started coming back and eventually grew through the skin graphs and I was in a lot of pain all of the time. Eventually, after seeing a lot of doctors in Memphis, in December 2004 we were sent to Arkansas Childrens Hospital, where I was diagnosed with a Kaposiform Hemangiolioma, or KHE. The treatment was to use low dose Chemotherapy to shrink the Hemangioma. At the time my mom was being transferred to Florida for her job. When we got to Florida my mom found a doctor that got us involved with the people at All Childrens Hospital. They talked with the people at Arkansas Childrens Hospital and followed the treatment plan they requested. I had a Meta-Port put in my upper left chest and had weekly doses of Vinchristine Chemotherapy for 1 year.
I lost my hair and got very depressed, my mom and sister made me get up and kept me busy with other things to free my mind. I had to go to physical therapy one time a week to get the strength back in my legs from the chemo. It was a very tough time. But I did get to go to a Tampa Bay Bucs Football game and a lot of Tampa Bay Rays Baseball games and a lot of Tampa Bay Lightning hockey games, so there was some fun times and things that made me happy. I also got a shopping spree at Walmart and got to go to dinner with my sponsor and my favorite social worker. We also got to ride in a limo, it was the coolest.
So now, I have cancer and a whole lot of support from family and friends. I am putting my life in God's hands completely. He will keep me safe and my family safe too.
From Sara, Jacob, & Kaite
This is day 1. We have no clue where this is going to lead and what the treatment plan is. Its all up to God. We just request prayers and love from everyone while we go through this.
Thank you everyone,
Love Sara, Jacob & Kaite