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Quick Update!
Pathology informed us yesterday that Jacob does NOT have CANCER!! YAY!. We are waiting on results to find out exactly what it is. We are at home and Jacob attended school today and will be at Archery practice this afternoon. Feels so good to get back to normal. I will post an update when we have the completed pathology report.
Thank you everyone for your prayers! I truely believe that they made a difference in Jacobs health. Because 3 weeks ago even the doctors were concerned, and now he is going to be okay~!!
Peace, Love, and Prayer!
Sara
We are back in our room at the Grizzly House, we finally got released at 10:15pm. Because we were going to be so close they let us go, Jacob really needed some quite time and a good nights sleep.
The surgeon came in a took the drain tube out around 4pm. Said that he is looking good. He can shower but needs to take it easy for a few days.
Monday we have to see the primary physician and Wednesday we have various appointments and Thursday we see the surgeon again for followup and pathology results(if we dont already have them Monday).
I just got the room cleaned up and got Jacob in the bed resting, he did ask for pain medicine 13 hours since the last dose. I guess moving around really bothers him, he is pretty stiff.
Well Im going to try and get some rest now.
Goodnight All!
Peace, Love, and Prayer!
Sara
Ok update on surgery:
It went well, he has 3-4 small incisions that I can tell, he is pretty swollen. It took them 3 hours. He has a drain coming from his face. They have given him Percocet, Dilaudid, and oxycodone for pain. We see the surgeon next week and expect to have results then.
Us:
We are doing well.(Kaite and I got food poisoning from the cafe yesterday and finally we are better. Who would have thought you could get food poisoning from eating at the hospital?) Jacob is really irritated with the doctors and nurses and other staff bothering him. He is not really resting well. He was awake every hour during the night, up for a bit at 2am and up for good at 5am. He went 22 hours with no pain medicine and we finally got him to tell us he needed some, not sure why he wont ask for it, I guess he is trying to be tough or he doesn't like feeling drugged. The primary doctor came in a bit ago to check on him, she said we will see her on Monday and we could have results by then, possibly. She was not sure how long the surgeons wanted the drain in, we should see one of them soon today.
Jacob received a netbook from the Commercial Appeal so we can keep up with this site and he can talk to people. He is very greatful!!!! He also received a Gameboy Game from his Mimi and a shirt and hat from Ms. Holt. He wants to send special thanks to everyone.
I want to thank everyone for their continued support and special Thanks to My sister Rachel for taking care of Kaite while she was feeling under the weather, and for taking care of my 4 legged child Duke, and for taking care of us while we are here. I want to send special Thanks to my Uncle John for coming to check on us and taking care of Jacob. I also want to send a big thank you to my sister Leslie and her family for taking care of my little furry baby Bella(I hope she stops crying, soon I know she misses her cuddle buddy Duke.)
Well thats all for now, if I missed anyone Im sorry!
I will post update when we hear from the surgeon.
Peace, Love, Prayer!
Sara
From Sara:
Jacob is in surgery, been there for 1 1/2 hours, hopefully coming out soon. He seemed to be full of anxiety, but me too.
Will post update after I surgery.
Today was visits with the pre-op people, blood work, and sent to see a Dermatologist regarding the Hemangioma on Jacobs back and some moles on his back as well. Tomorrow when they do the open biopsy they will be doing biopsies on 4 moles on his back. Well off to get the room packed as we will be spending the night at the hospital instead of Grizzly House tomorrow night, and we have to be there at 6:45am.....
More later.....
Peace, Love, and Prayers!
Sara
Sara, Jacob, and Kaite have made it safely back to Memphis to prepare for Thursday's surgery. It has been snowing/sleeting/raining for a few days, so I am glad that they made it with no problems. I will be placing the order for the bracelets on Friday. Let me know if you have any questions or concerns.Thanks,Leslie
Well, we are getting ready to head out again tomorrow for St. Jude. We have a full day of appointments and blood tests set for Wednesday. Thursday is when they do the open biopsy. Lets Pray that everything goes well and the doctor has a good nights sleep and takes his time to prevent paralyzing Jacob's face during surgery. Thank you everyone for your continued support!!
Peace, Love and Prayer!
Sara
No new updates today! Just going to eat some wings, spend some time with family, watch the superbowl of course!!!
Quick update!!! Just got a call from Jacob's Primary Physician at St. Jude, Dr. Holly Spraker, she says the PET Scan showed nothing else. So it seems to be centralized to his face and neck at this point. GOOD NEWS!!!! So plan for next week is we return to Memphis Tuesday afternoon for appointments Wednesday and Open Biopsy Thursday.
Thank you everyone for your continued support!!
Peace, Love, and Prayers!!
Sara
Jacob is still in Memphis today. He was seeing the doctors and getting more details about the surgery he is going to undergo on Thursday of next week. He is was having his PET scan to determine if there are any other areas of concern in his body. We are praying for a positive outcome on this test! Sara and Jacob should be headed back sometime in the morning. I know that Kaite (Jacob's sister) is super excited that they are coming back. She misses her brother and her mommy and wanted them to be here for her Valentine's Dance tomorrow night! I know that God is working in their lives and hoding Jacob safely in his hands as this journey progresses. Please continue to pray for Jacob and his family. All prayers and support are appreciated. Please remember that you can preorder your support wristband on the right side of the page. Our goal is 30 preorders! So show your support for Jacob and raise awareness about ACC by getting a wristband. They are $3.00 plus s & h. A portion of the proceeds will be donated directly to St. Jude Children's Research Hospital in Jacob's name.Thanks,Leslie
Today was completely long, hectic, and totally overwhelming. Met a lot of amazing doctors and special people that will be joining us on Jacob's Journey. Today we had Assessment, Labs, New Patient Intake, New Patient Screening, met the ENT Surgeon, Child Life Therapist, met with people in the Surgery Clinic, and the Social Worker. Now we are at the Memphis Grizzlies House and its great!!!! Tomorrow they have added more testing and appointments. Jacob will be having a PET Scan tomorrow so they can find out if there are anymore issues anywhere.
The ENT, Dr. Sandeep Samant, looked over Jacob's scans(CT and MRI) and informed us that there is bilateral lymph nodes in his neck that are of concern in addition to the masses in his face and neck. So Monday, latest, we will know if there is any more areas in Jacob's body that are of concern. And as of right now on Wednesday we will return to St. Jude for more tests and visits with the doctors before they do an open biopsy on Jacob at 9am on Thursday. Dr. Samant seems concerned and says the only way to get a definite answer is to go in a take the lymph node and a piece of the mass that is in Jacob's jaw area. At this time he will not be removing the Parotid gland(which is the mass that is measuring 9.5mm and the biggest concern.) They tell us that we should have simple results on Friday afternoon. They will do deep testing if they see anything in either specimen that is unidentifiable.
So for now, we are in Memphis until Saturday morning, then home to help Kaite get ready for her Valentines Dance and Jacob ready for his. Then we head back to Memphis on Tuesday for the schedule next week.
Will post more as I know more.
Peace, Love, and Prayer!!
Sara
Just wanted to update everyone and let them know that Sara and Jacob made it to Memphis safely. Jacob has like 9 or 10 appointments tomorrow and Friday. Sara is going to keep me updated as she meets with the doctors. Kaite and their kitty kat Bella are safe and sound here at my house! Please just continue to pray for Jacob and the family. This is a very difficult time and our concerns are for what we still do not know about Jacob's condition. Also, please say a prayer for the doctors and nurses to be on their game as they begin this process with Jacob. Pray for their strong medical minds, careful eyes, and gentle hands as they determine the course of treatment that will be best for Jacob. As a family, we are definitely learning that God has a plan and that everything really does happen for a reason. Thank you to everyone for your love, kindness, and support! Also, just wanted to let everyone know that if you have any questions or want specific info or updates, please contact me or my other sister Rachel. If you need our cell numbers, please email me teamjacobacc@yahoo.com. Sara is really not able to answer calls right now and it is very difficult for her to have to go over everything again and again. She needs to focus on Jacob right now, so Rachel and I will be more than happy to answer any questions that you might have or pass on any messages that you have. Also, commenting on the blog is a great way to share your thoughts and support! Peace, Love, & Prayers,Leslie (for Sara, Kaite, & Jacob)
From Sara:
As I go through the house looking for paperwork and phone numbers of everyone I get an automated appointment confirmation phone call...9 appointments Thursday!! WOW!! I thought that automated lady would never stop....HAHAHA
8am(she said that twice so is there 2 appointments at 8 or is something wrong, if so..thats 10!!)8:30am, 10am, 11am, 1pm,1:30pm,3pm,4pm, 5:15pm. Thats just for Thursday. As of right now its only one for Friday, but we were told to be prepared to stay. Also, I am not sure about access to a computer while I am there, I think they have a media room. I will check it out when I get there. If I find a place I will surely send an update.
Thank you everyone and keep praying!
Peace, Love, and Prayer,
Sara
From Sara:The appointments start Thursday 8am, several throughout the day with the last being at 5:15pm and finish up(as we know right now) Friday at 9am. They told me at any point there may be appointments added.We are getting closer to ordering wristbands. I am working with a company now. If you are interested in purchasing one, they will be $3 plus shipping and handling. Please email me at teamjacobacc@yahoo.com if you have any questions or if you would like to sell them at your school or workplace! All help in raising money for Jacob and raising awareness about Adenoid Cystic Carcinoma is greatly appreciated!Thanks,Leslie
